How do I care for my child with a genetic metabolic disease? Don't ignore it

1. Rehabilitation therapy. In addition to specialized rehabilitation treatment for children, inherited metabolic disorders according to the doctor's instructions, rehabilitation training at home. Reduce the cost of treatment.

2. Diet therapy is very important.

For example, children with phenylketonuria should have their l- phenylalanine intake strictly controlled.

The amount of l- phenylalanine in each food. Calculate how much to eat per day according to the formula, based on your body weight.

Children with galactosemia cannot eat lactose. Parents must be careful in general to avoid their children's intake of foods containing lactose, including foods such as cheese and milk powder.

Children with methylmalonic acidemia and propionic acidemia need to be treated with some special formula, so parents usually have to feed their children some special formula. These are all dietary treatments and parents need to be careful.

Take care of your child. Children with hereditary diseases should receive as few or no preventive vaccines as possible.

Some vaccines must be administered carefully and when the child is well enough to receive them.

4. i.e. treat minor illnesses as serious illnesses and major illnesses as serious illnesses. Children with hereditary metabolic diseases are prone to metabolic disorders.

Especially in the case of illness, some common diseases such as colds and fevers require hospitalization.

We should be very careful if pneumonia, for example, is slightly more serious